Happy Halloween!

Purple Pumpkin!  I am ready to go!

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

I took Gwenny to the elementary school to visit Gramsy at work on Halloween morning.



Gwenny most enjoyed taking candy out of her pumpkin and throwing it on the ground!

All worn out after too much fun trunk-or-treating.

I've been falling behind on blogging because I'm measuring food ALL THE TIME.  I'm getting the hang of it now, though, and just repeating the quicker recipes for Gwenny's keto diet.  I think there are a few factors contributing to the fact that it takes me so long to get her food ready. 

 First, and obvious, is that I have to measure EVERYTHING that goes into her mouth.  (OK, not fluids...so, almost everything.) 

 Then, it has to be something she likes.  (I make something, I like it...she doesn't.  Back to square one.) 

Third, she's two years old but has the chewing skills of a one year old, so I'm trying to be careful with foods that she can easily chew. (Such as cooked carrots, rather than raw.) 

Also, she's starting to get really independent and wants to feed herself all the time.  That means, nothing that has to be eaten with a spoon.

She's doing really well and we have been able to lower her keppra once since being out of the hospital.  (Yay!)  No seizures, ketones are staying high and she is eating and drinking well.  I got her a new sippy cup with no handles, and she's drinking out of it like a pro!  She also LOVES drinking out of a big girl cup, which she holds and drinks out of all by herself (although most of the fluid goes down her front.)  She still loves to hold a fork or spoon and has started a sort of "stab" at her food with the fork.

Gwenny is vocalizing all the time now, mostly random vowels, 'mama' and 'baba,' although I occasionally will hear a "d" or "g."  She has figured out how to work a light switch and just thinks it's the coolest thing ever.  We play with the lights on the way down the stairs to breakfast every morning.

Starting the Ketogenic Diet

Gwenny with her little purple pumpkin.

Paint one of your pumpkins purple this Halloween to show your support for Epilepsy awareness!

We started the Ketogenic diet this week for seizure control and to lower  (and hopefully discontinue) Gwenny's seizure meds.  The diet is high fat, adequate protein, low carb and makes the body think it is fasting.  Something about the fasting state (or the body burning fat instead of glucose) can control seizures in some people.

Primary Children's policy is to admit a child into the hospital when starting the Keto diet so they can monitor glucose and the body's reaction to the diet change.  We expected to be in PCMC for three days, but Gwenny was doing so well they let us go home after two days, one night.  This was wonderful news, as they were pricking her finger every four hours all day and night!

Our visitors playing with Gwenny.

PCMC is definitely set up for children.  They had a wagon available for Gwenny to ride in whenever we left our room, which she really enjoyed. 

 We took a trip to the play room when we had some free time between meals, doctor visits and blood checks.

Hospital Keto meal:  cream, egg, sausage, cheese.

Hospital Keto meal: chicken, avocado, cauliflower and cream/cheese sauce.

Gwenny's little friend that came on her food tray.

This is a Keto strip.  We put cotton balls in Gwenny's diaper and test her urine four times a day to make sure her ketones are in the moderate to high range.  (Ketones are like a sort of "ash" in the blood and urine when the body is burning fat instead of glucose.)

This is the first Keto meal I measured out by myself.  Meatballs, sweet potato, broccoli, cauliflower, butter, cream cheese, and cream.  Everything is measured exactly on a scale.



Almond crackers:  almond flour, macadamia nut flour, olive oil, egg white and salt. 
(Gwenny loves these!)



October visit with Dada and Brother